Back in January of 2008 I started having just the most vague pain in my left kidney area, and every day for three months it got a little more noticeable. Finally it was becoming an actual “pain”, so I called my doctor in March and went to see him. He poked and prodded me, and suggested maybe it was a kidney stone, but had me get an abdominal CT scan to make sure. The CT showed a couple of tiny stones, which he said shouldn’t be causing me any pain, and a cyst of some sort on my spleen. Over the next month or two the pain subsided and became intermittent, and finally just about went away. On the CT, however, the radiologist had noted a spot on my lung, off to the side in the scan, so I had to go back for a chest CT scan a week or so later. There is no way to know the source of the pain, but I thought it was the cyst on my spleen.
The reading on the chest CT showed a nodule in one of my lungs, and my doctor and I agreed to do another scan in a few months and see if anything had changed. In June I had the follow-up CT scan for comparison, but at a different clinic in St. Joe’s hospital across the street from the first CT lab. After a few days I called my doctor’s office, who told me it would take a full 2 weeks to get the results. After two weeks I called again, and my doctor said the radiologists hadn’t done the comparison, but had noted a nodule 7 mm in size, etc., etc., and he wanted me to see a pulmonologist. The pulmonologist’s office called to schedule the appointment, but on a Friday before a busy weekend, and I missed getting their message until the Monday appointment they wanted me to attend was past. They set me a new appointment with a Dr. Bill Patton for eight days later, on a Wednesday. Meanwhile I had called my doctor’s office a couple of times but he hadn’t called me back, as I wanted to know the results of the comparison report.
Meanwhile, my wife was quite nervous and very upset with my doctor. She’s a neuropsychologist who works at a pain clinic, and today (7/29/08), the day before my pulmonology appointment, she got my information from the radiologists and had two of her doctor colleagues take a look at it. She called me and said she is going to my appointment with me tomorrow, and I knew it must be bad news. She is very dedicated to her work, and wouldn’t have take time off for such a thing if it was routine.
I skipped my regular weight training class tonight, and she came home earlier than usual from work (around 7PM) and we talked. She had the second scan report in her hand, but said the radiologists still don’t have the data from the scan in March. I didn’t read the report in detail myself, but she said it indicates I have multiple nodules in my lungs and a fatty mass of some kind in one armpit. She also is really ticked at my doctor, as the radiologists had sent him their report “stat”.
Having been through one of my second wife’s bouts with cancer right after we got married in 1995, I think I understand the issues and “the drill”. Tomorrow the pulmonologist will want to talk about what they know and set a plan to do a bronchoscopy (my wife’s doctor friends say that’s most likely) to get some cells to test and examine. I think it possible they might also do a needle or other biopsy on the mass under my armpit.
Once they know exactly what they are dealing with I will probably be sent to an oncologist, and a plan for chemotherapy will be set up, with me starting treatments within days. My wife’s friends said it might be sarcoiditis, treatable with steroids, or it might be something called proliferative neoplasm – apparently an aggressive type of cancer. In either case, if there are multiple nodules it would indicate a systemic problem that wouldn’t be addressable through surgery or possibly radiation, so that would save me the cutting and radiation-related discomforts. It could also be something in the middle, not extremely aggressive and susceptible to chemotherapy.
I guess I’ll find out tomorrow. I am resigned to fighting the good fight, staying positive, and making the most of every minute, as I learned to do with my second wife. Nobody knows how long they’ve got, so that’s the best approach for anyone, sick or not. Life is good, and beats the alternative.
At least I don’t have to go through the month of terror and not knowing that I went through with my second wife back in 1995. It took us that long to arrive at the positive attitude I just described, but after that we started having weekly happy hour get-togethers with our best friends and going to the movies once a week. Life was good, even as she went through fourteen months of chemotherapy followed by a bone marrow transplant procedure that put her 800 miles away for 6 weeks and almost killed her by itself. She won out, though, and we had another wonderful 5 years together. I hope to do as well or better myself, but at least I already know how to live, come what may.
The saddest part I am facing is how the news may affect my family and friends. I know it will be tough for them, and wish I could spare them that. It will be a life lesson for them, though, and hopefully they will pick up the positive attitude about life that I gained in the past, and it will help them live better lives from here on.
I expect that writing this blog will be therapeutic for me, too. This whole messy thing represents a bit of a speed bump in my life, which was going better and better as I enjoyed my third (and wonderful) marriage, wrote blogs, wrote and played music, and generally did things I love to do like there was no tomorrow. I will continue on with that lifestyle as long as I can, however long that may be, and … now I have something else to blog about!
Please feel free to comment, but I appreciate it if you keep it up-beat and refrain from too much detailed sharing of experiences. It’s different for everybody, but the attitude is what counts. I feel healthy and strong today, probably stronger at 57 than I’ve ever been in my life, and I plan to continue everything I can, including looking for a new job (I was laid off from my day job ten days ago … <bleh>).
Best to all – Tim